Zachary is our 9 year old son. He is in need of a life-saving bone marrow/cord blood transplant. We live in Florida, but we will be receiving treatment at Duke University Medical Center, in Durham, NC. The doctors have said that we will need to be in NC for a minimum of 6 months to a year.
Zachary and his brother, Ryan, both were born with an immune deficiency called Severe Combined Immunodeficiency (SCID), better know as the Bubble Boy Disease. Unfortunately, Ryan died before he was diagnosed and therefore, never received a transplant. Zachary has already had 3 bone marrow transplants, but they did not completely fix his immune system. The last year and a half has been really tough on Zachary and it is only going to get worse. Without treatment, he too will die. The doctors believe that they can cure him this time and that he will finally be able to be a “normal” little boy doing “normal” little boy activities if he can receive this treatment.
This will be Zachary’s 4th transplant. The first 3 worked for the first 9 years of his life… but the last year and a half Zachary’s health has been declining and the doctors have determined that he will need another transplant. This time will be completely different from the other 3. This transplant will be an (umbilical) cord blood transplant from an unrelated donor and Zachary will have to go through chemo. The doctors believe this is Zachary’s only chance to survive. This could be a COMPLETE CURE: no more weekly shots and infusions, medications, breathing treatments, blood draws, etc. may be necessary. The end of isolation… the beginning of friends.
Zachary and I (his mom) will be going back to live in North Carolina, again, for treatment which will be a minimum of 6 months to a year. (Last time, we lived there for 10 months.) Family and friends will only be able to visit, including Dad–he has to work and take care of the home/farm. So it will be just the two of us. I thank you all in advance, from the depths of our hearts, for the encouragement, prayers, support, love and donations that will be getting us through this very difficult time. The hospital said we would need a minimum of $50,000.00 to cover out of state living and travel expenses and medical expenses for treatment.