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Zachary and Bam Bam

Zachary is our 9 year old son.  He is in need of a life-saving bone marrow/cord blood transplant.  We live in Florida, but we will be receiving treatment at Duke University Medical Center, in Durham, NC.  The doctors have said that we will need to be in NC for a minimum of 6 months to a year.

Zachary and his brother, Ryan, both were born with an immune deficiency called Severe Combined Immunodeficiency (SCID), better Zachary-and-henknow as the Bubble Boy Disease.   Unfortunately, Ryan died before he was diagnosed and therefore, never received a transplant.  Zachary has already had 3 bone marrow transplants, but they did not completely fix his immune system.  The last year and a half has been really tough on Zachary and it is only going to get worse.  Without treatment, he too will die.  The doctors believe that they can cure him this time and that he will finally be able to be a “normal” little boy doing “normal” little boy activities if he can receive this treatment.

This will be Zachary’s 4th transplant.  The first 3 worked for the first 9 years of his life… but the last year and a half Zachary’s health has been declining and the doctors have determined that he will need another transplant.  This time will be completely different from the other 3.  This transplant will be an (umbilical) cord blood transplant from an unrelated donor and Zachary will have to go through chemo.  The doctors believe this is Zachary’s only chance to survive.  This could be a COMPLETE CURE:  no more weekly shots and infusions, medications, breathing treatments, blood draws, etc. may be necessary.  The end of isolation… the beginning of friends.OLYMPUS DIGITAL CAMERA

Zachary and I (his mom) will be going back to live in North Carolina, again,  for treatment which will be a minimum of 6 months to a year.  (Last time, we lived there for 10 months.)  Family and friends will only be able to visit, including Dad–he has to work and take care of the home/farm.  So it will be just the two of us.  I thank you all in advance,  from the depths of our hearts,  for the encouragement, prayers, support, love and donations that will be getting us through this very difficult time.  The hospital said we would need a minimum of  $50,000.00 to cover out of state living and travel expenses and medical expenses for treatment. 

 Sincerely,The Smith’s
 Curtis, Jennifer, “Ryan”, and Zachary
North Ft. Myers, FL
Zachary-family

12 thoughts on “Home

  1. Teri Ziegler

    We love you so much and will continue to pray for the “complete cure”. It will be amazing to see him running & playing again. Such a gentle soul. We will contribute to this fund and send it to others as well. LOVE YOU 24 X 7! John & Teri

  2. Alexxa Reed

    This is so very sad. When I grow up I’d like to be a doctor. & I’d love to be able to help younger kids. I hope he get what he needs. He’s adorable!

  3. Tina Johnson

    Words can never say how I feel. My prayers are going up as I write this. Zachary is a very strong young man and he will one day be able to live a normal life. Stay strong Jen and Curtis and know that you are not alone.xoxo

  4. Leslie Swan

    praying for you.. My daughter when though cancer 4 yrs. ago. she is now cancer free. I cried reading this.. we to had to move to another county for treatments. ( only 2 hours away) Her and I were on our own too. I am friend of your cousin Mary Jo Mestelle here in Michigan. She is passing the word! I will be praying for your son!!

    Leslie Swan

  5. George & Kathie

    We will continue to pray for Zachary’s full cure from this, and continue to give and share with others so that that will have the opportunity to do the same!

    God alone is truely good!

  6. Jennifer Smith

    Thank you, George & Kathie! Thank you, Yvonne! We appreciate everyone sharing, caring and praying. It means so much to know that there are so many out there that we have never even met… that care. Angel Flight… we did use them a couple times when Zachary was a baby. What a wonderful organization. Thank you!

  7. Tracie "Hensley" Adkins

    Hello Jen and Curtis-
    It’s been a long time and I can’t believe we’ve never ran across each other. David and I live in Estero and have a 13 yr old son, Cole.
    I’m so sorry to hear what you all have been going through…David and I just wanted to send you our sincerest wishes and prayers to you and your boy…if there is anything we can do, please let me know and just hope you accept this as a sincere hello and prayers for your family.
    Tracie and David Adkins

    1. Jennifer

      Hi, Tracie, Dave and Cole~~

      Thank you, very much. We moved to N. Ft. Myers, 2 years ago. Glad you are doing well. Love the name, Cole! See you are still camping! That’s great. We have a little pop up, but don’t get a chance to use it anymore. Miss you. Thanks for your prayers and support.

      Blessings,
      Jen

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